Wow! Nearly into September already sorry i haven't posted for so long. So much has happened but the most important thing to say is I have only had one big blip and that i stayed at home(campsite) i didnt need hospital treatment! Woop Woop
Yes i have had days where walking any distance had me coughing and very out of breath but i have had no hospital admissions.
Over the summer i have had 3 germans come and stay at my house, there was a group of them come to my church and we took them on day visits four days in a row, my mobility scooter came in useful else i would never have been able to keep up. It even worked on cross country.
I have been on two camping trips they went quite well, i only had a few hiccups with distances from various places like toilets or shower from my tent and also got a little flooded by rain.
My asthma did get grumpy with the wet but all was good i battle forth.
At the moment i am doing a work placement at my local hospital it involves putting letters in envelopes and putting information on to a database. At times it is quite dull but it is certainly good to be getting out of the house. So there are pros in there.
Unfortunately the Autumn is coming the leaves are changing colour and i am starting to feel it in my lungs they are starting to play up and i am getting symptoms more often. EEK! Off to see my friendly and extremley good consultant tomorrow and my Gp has sent a letter to a immunologist for allergy advice, all i did was ask and he said yes he would try, what more can one ask?! I was completely amazed and stunned! Anyways hope people are doing ok, i am off to rest!
Thursday, 27 August 2009
Wednesday, 19 August 2009
Dust and dirt
At long last, the buiding work has started on our new all singing, all dancing Health Centre. Progressing on site behind our garden fence, looking good so far. Lorries lined up cheek to jowl like on the Herbie films when the baddie wants to knock a little old ladies house down.
So far all they seem to have done is move earth from front to back of the site.
And that's where the problem lies for me. Earthy dust gives me tight chest and feeling I cannot swallow. Came across this trigger, when out in the garden over the summer watching my husband sweep up the dust on the paving slabs.
I'm keeping windows shut and sitting in front part of house whenever possible. Strange thing is, its fine when I walk past the site. Maybe its all concentrated in my back garden which sits a little lower than the building site.
Chap from buillders came around yesterday to photograph our back garden and others - no clue as to why. Interesting..
Monday, 20 July 2009

Poolewe
Stayed at the caravan site in Poolewe. Poolewe Hotel - drinks are priced on the high side. G&T and a coke - £6.50. The views more than make up for it, though.
Spent two days going around the National trust for Scotland's Inverewe Gardens at Poolewe.

The original owner, Osgood Mackenzie, set out to make a garden of a rocky windswept peninsula in the 1860s.

They'd to carry in the soil in barrows - I will never grumble about the size of my postage stamp garden again. One puff here and there for the pollen and moist air.

Ullapool
Went to Ullapool next. I'd have preferred the campsite out of town but catching the early ferry meant staying at the town site. Still, it looks good in this evening shot around 8 pm. We could see the ferry coming up the loch.


Took three puffs of my preventer in the morning before any big events like going on the ferry from Ullapool to Stornaway and pleased to report that I was one of the few passengers unaffected by the ferry which took on the attributes of a fairground waltzer as it headed across the Minch.

Bus tour around Lewis and Harris.
Stopped off at Dun Carloway Broch which still has enough of it left over the centuries to show the twin walled construction. Made my way slowly letting fit people overtake me, to the top of the path. Even summoned up the courage to go through its tiny door. I can't get down on my knees due one thing and another. Really must see about that one day. So, crouching as far down as I could, made it inside. Breathed deeply before making the re-emerge again. Didn't feel too bad as others didn't even attempt entering.
Durness
Spent several days at Durness. First here in 1983 and again in 1987. Hasn't changed much.
But the Craft Village at Balnakiel seems a bit more commercialised with their website addresses. No wee crafty bits and bobs to bring back as a souvenir. Bit disappointed with that. I still have the small wood picture from 1983 and my daughter her hand-made jigsaw. Nothing like that here nowadays. Sad. Once known as an outpost of hipppiedom, the original hippes have either upped sticks or become more conventional.
Meanwhile Durness is largely unchanged. The hotel next the campsite - Sango Sands Oasis - has had an extension added. Food and drink are still good and prices similar to most places at home.
One additon to Durness is a John Lennon Memorial Garden. He would holiday here with his family, staying with and aunt and uncle. The main part of the garden has standing stones with the words from In My Life inscribed.

Back at the campsite, this was the view from our caravan window.

With husband at hand, I even got myself down on the beach at Durness. At the bottom of a high sandy cliff, there are no real paths. Being a scaredy cat, I've put off going down such places since leg break 2001 (slipped on a much smaller hill - wet grass at side of a hospital carpark. Ha ha.)
Coming back
Driving back, just coming up to the outskirts of Lanarkshire, I started getting hayfever symptoms of itchy eyes and clogged throat. Perhaps I'm allergic to Scotland's Central Belt. Bagsy a move to the far north!
Friday, 26 June 2009
Hot and Humid weather
I have recently discovered a new trigger for my asthma. When the weather is hot and humid this seems to set my asthma off, my peakflow drops and i need more of my reliever but as soon as it cools down or rains it all goes back to what it was before.
It is very annoying as i had just got most of my strength back and now on hot and humid days it feels like i have gone back quite a few steps. I get out of breath so quickly.
I am not sure what i can do to avoid this trigger but at least i am now aware of it.
One achievement is i have now been off steriods for 6 whole weeks!
Next week i am due to start a work trial to see if i can manage working with my asthma i am hoping that this will go well and that with time i will be able to manage a 16 hour a week job. I will keep you updated on on how it goes and i have everything crossed that it all will go well!
It is very annoying as i had just got most of my strength back and now on hot and humid days it feels like i have gone back quite a few steps. I get out of breath so quickly.
I am not sure what i can do to avoid this trigger but at least i am now aware of it.
One achievement is i have now been off steriods for 6 whole weeks!
Next week i am due to start a work trial to see if i can manage working with my asthma i am hoping that this will go well and that with time i will be able to manage a 16 hour a week job. I will keep you updated on on how it goes and i have everything crossed that it all will go well!
Thursday, 11 June 2009
Stress and Asthma
Wow no one has posted anything recenlty.
Overall recenlty my asthma has been really well behaved but recently I have been very stressed and noticed my control has got a lot worse. Before when I was goign through a really bad faze asthma control wise Dr emntioned stress to me but I never felt stressed but I now think I probably was stressed that I couldnt conrtol my asthma and then it was a vicious cycle.
I know jsut now I can pinpoint what has caused me to be stressed and it coincides with my lapse in control. It has not effected me too much in the day time but the night is causing some really problems. I am up at all hours. The more this is happening the more worked up I am getting that it is the start of another bad patch and Im goign to end up going back into hospital.
It seems ot be a real viscious circle jsut now. I got stressed then my asthma got bad and now i am getting stressed because my asthma has been getting worse.
For me the main worry is not that my asthma is getting bad but the impact that has. I play alot of golf and being shakey from ventolin is driving me mad as putting when shaky leads to some very interesting putts and this could ruin some scores.
I start work soon so hopfully this will all blow over and I will be too preoccupied with work to eb abelt o be stressed!!!
Overall recenlty my asthma has been really well behaved but recently I have been very stressed and noticed my control has got a lot worse. Before when I was goign through a really bad faze asthma control wise Dr emntioned stress to me but I never felt stressed but I now think I probably was stressed that I couldnt conrtol my asthma and then it was a vicious cycle.
I know jsut now I can pinpoint what has caused me to be stressed and it coincides with my lapse in control. It has not effected me too much in the day time but the night is causing some really problems. I am up at all hours. The more this is happening the more worked up I am getting that it is the start of another bad patch and Im goign to end up going back into hospital.
It seems ot be a real viscious circle jsut now. I got stressed then my asthma got bad and now i am getting stressed because my asthma has been getting worse.
For me the main worry is not that my asthma is getting bad but the impact that has. I play alot of golf and being shakey from ventolin is driving me mad as putting when shaky leads to some very interesting putts and this could ruin some scores.
I start work soon so hopfully this will all blow over and I will be too preoccupied with work to eb abelt o be stressed!!!
Thursday, 14 May 2009
Spring Cleaning
Keep telling myself that asthma doesn't get in the way of my normal life.
Just occasionally it creeps up and says boo! Like today.
Today, I decided to sort out my overcrowded kitchen worktops. To see just exactly what was taking up the space and could I re-arrange toaster, coffee maker, kettle, 2 microwaves, several pots containing wooden spoons, spurtle, ladle etc, etc. We'd bought ourselves a bread maker - makes very good bread - and needed space for that too.
Pre bronchitis this year, I would've done the whole thing in couple of hours. To my surprise, this time I ran out of energy pretty well near the start. Had a wee seat and a cuppa. Did a bit more, thinking where has my energy gone? Another longer seat, looked at emails and had another cuppa. Finished off with a quick tidy up of the surfaces ie put kettle back in usual position and cleaning stuff back in cupboard. Promised myself to do some more tomorrow.
Its a puzzle cos most days, weeks even, I'm fine. Holiday weekend, I weeded for most of an afternoon with only one break. Get a bit out of breath on a brisk walk to the other end of our main street. Most folk would. But this? This was a bit puzzling.
Went off to Starbucks for usual coffee and took my book. Just walking up the stairs with the tray had me out of puff again. Sat back and started on my fruit bread. Cough, cough. OK, take a deep breath and try a drink of coffee. Splutter, cough. Hadn't done that for ages! Ventolin ahoy!
Two puffs and settled back with my book. Fine again, took my fruit bread and coffee.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Most times I have an easy life and completely forget (apart from the twice daily inhale) that I have asthma. Like yesterday, when someone came to the door with a survey on local transport. Did I have a car, use public transport, ride a bike, etc.
"How is your health?"
"Fine" I said happily.
"OK, so no long term conditions?"
"None. Oh wait a minute, yes!" I stammered "I forgot. I have asthma."
We both laugh as I explain it's a relatively recent diagnosis.
Living with asthma? It has its funny moments.
Saturday, 9 May 2009
World Asthma Day - London/Birmingham!
Well! As Olive was saying, last week was World Asthma Day! Me and Emzieness spent a good portion of our day campaigning for Asthma UK! We left Leicester at about 7.15 to travel to Birmingham, to speak at a conference for P.E Teachers and School Nurses about our experiences with both. The Day was run by the George Coller Memorial Fund. This is a charity set up by a mum after her young boy died of asthma. There was about 20 Asthma Nurses there, and a consultant spoke aswell. It was a fantastic morning, and I learned a lot.
That evening we headed off to London to the Parliamentary reception at the Houses of Commons. It was great. There was a lot of MP's there, and a few people got up and spoke, including a 19 year old who had managed to get his asthma controlled due to the help of a fantastic asthma nurse. He highlighted that having asthma hasn't stopped him from doing anything that he wants to since he was able to get it under control. We spoke to a lot of MP's, and tried to get them to start taking more notice of asthma, and not brushing it under the table as "not serious".
Asthma control is very important. Thanks to having my asthma controlled I've been able to go SCUBA diving, do a Sky jump off the Sky tower in New Zealand, go Skiing and Travel the world for 3 months. Having asthma is not something that should stop you from doing many activities, and I know in some cases it is hard to get control of your asthma, but hopefully with the help of Asthma UK, more drugs will be funded and found!
Anyway, On the Wednesday myself and Clarebear went to London Zoo, It was a fantastic day out, even though we were both wrecked by the end of the day!
So what did everyone else get up to for LimeLight?
Here's some pictures! The first is the official one from Birmingham, and the second is one of mine from London!

That evening we headed off to London to the Parliamentary reception at the Houses of Commons. It was great. There was a lot of MP's there, and a few people got up and spoke, including a 19 year old who had managed to get his asthma controlled due to the help of a fantastic asthma nurse. He highlighted that having asthma hasn't stopped him from doing anything that he wants to since he was able to get it under control. We spoke to a lot of MP's, and tried to get them to start taking more notice of asthma, and not brushing it under the table as "not serious".
Asthma control is very important. Thanks to having my asthma controlled I've been able to go SCUBA diving, do a Sky jump off the Sky tower in New Zealand, go Skiing and Travel the world for 3 months. Having asthma is not something that should stop you from doing many activities, and I know in some cases it is hard to get control of your asthma, but hopefully with the help of Asthma UK, more drugs will be funded and found!
Anyway, On the Wednesday myself and Clarebear went to London Zoo, It was a fantastic day out, even though we were both wrecked by the end of the day!
So what did everyone else get up to for LimeLight?
Here's some pictures! The first is the official one from Birmingham, and the second is one of mine from London!


Wednesday, 6 May 2009
Asthma in the Limelight- Scotland
To kick off asthma in the limelight and all the fundraising associated with it I went to Waverley Train Station with a women who works with AUK and some other volunteers to do a bucket collection for AUK. We were equipped with our buckets, stickers, lime green AUK t shirts and to top it all off a lime green curly wig!!! It was a great day a little cold at times but all in a good cause.
While collecting I had some interesting comments. Alot of people wanted to buy my wig and pffering alot of money for it but sadly I had to recline the offer (I grew attached to it after a while). Other people comment that asthma wasnt real and some people said they werent going to gove to an asthma charity cause it wasnt a worthwhile cause but if it was for cancer they would ahve donated. This really hit me hard at how people feel about asthma. The stats are horrific for asthma and yet people still dont aknowledge it along with other very serious diseases. In Scotland we didnt do anythign major for World Asthma Day because today Wednesday we have a Cross Party Group meeting in the Scottish Parliament whihc I am going to later today but I need to find my smart clothes first!!!!
Hope everyone else had a good day and week. Off to parliament.
Below is a photo of me ready for a day of collecting!!!!
Monday, 4 May 2009
Amazing Day Out!
On may day bank holiday i decided that i would go with my friends for an outing to the seaside. I got myself all organised and well equipted with my nebuliser, nebules, pain killers, wheelchair and other disablity accessories (disabled key and badge).
Told my passengers that i would be stopping for a neb break on route to keep my lungs in there normal routine.
Arrived at Bridlington couldnt find the disabled bays so parked in an ordinary parking space, I have not done that for so long, the spaces are so small it was quite amusing really, went to find out how much it was to park and discovered i could still use my disabled badge :D so it was free!
Got the wheelchair out, interesting in a normal parking space, went out to find my other friends who had arrived before us due to me needing to stop for neb break.
We must have looked an amusing sight, i was in my wheelchair and one of my friends who was pushing was wearing her inline skates. We had a great laugh!
Over all it was a great day out, as i had planned ahead we did not have any problems and all went smoothly and i was able to keep up with my friends.
Living with asthma you can live a normal life just by planning a little in advance and having people who do not mind pushing you around in a wheelchair or walking slowly with you.
I am now considering however purchasing a scooter so i can get a little more independance as i know there would have been no way i could have walked from the north beach to the south beach i definitely needed the wheelchair.
Just to encourage other asthmatics, plan ahead and you can have fun even with Brittle asthma!
Told my passengers that i would be stopping for a neb break on route to keep my lungs in there normal routine.
Arrived at Bridlington couldnt find the disabled bays so parked in an ordinary parking space, I have not done that for so long, the spaces are so small it was quite amusing really, went to find out how much it was to park and discovered i could still use my disabled badge :D so it was free!
Got the wheelchair out, interesting in a normal parking space, went out to find my other friends who had arrived before us due to me needing to stop for neb break.
We must have looked an amusing sight, i was in my wheelchair and one of my friends who was pushing was wearing her inline skates. We had a great laugh!
Over all it was a great day out, as i had planned ahead we did not have any problems and all went smoothly and i was able to keep up with my friends.
Living with asthma you can live a normal life just by planning a little in advance and having people who do not mind pushing you around in a wheelchair or walking slowly with you.
I am now considering however purchasing a scooter so i can get a little more independance as i know there would have been no way i could have walked from the north beach to the south beach i definitely needed the wheelchair.
Just to encourage other asthmatics, plan ahead and you can have fun even with Brittle asthma!
Wednesday, 29 April 2009
Wow been a while since anyone posted. People must be busy and hopefully chests behaving. I have been busyish.
A few weekends back I got the chance to go out to the Forth Rail Bridge to watch a friend off AUK do an abseil. It was awesome. i would never be brave enough to do that. It was about 165 ft. I also got the chance to meet one of the people who do fundraising organisation and stuff for AUK and she has given me the chance to become more involved. I am going to be helping at a bucket collection at the train station wearing a lime green wig and t shirt for the AUK campaign putting asthm in the limelight. World Asthma day is on tuesday and then on wednesday Im going to the Scottish Parliament for the Cross Party Meeting. I am getting the chance to meet on of the asthma nurse specialists at the meeting too.
I have also sent in all my application forms for going back to uni. I am hoping to go back in September to Napier in Edinburgh to do nursing. I really want to get in so am keeping everything crossed. Hopefully I will hear soon.
Chest wise things have been pretty good lately. Had a slight chest infection but a increase in pred and some antibiotics sorted it out. I have stopped all sport except golf now and chest seems ot be liking it. I keep getting thoughts of what im missing as I still love some sport but I know i am healthier for it.
Off for some golf practice now.
Friday, 17 April 2009
3 Years on
My consultant said this morning my asthma and reflux is finally stablised, it has only taken us 3 years to bring it undercontrol, to find medication it responds too. Now the key is to keep it all undercontrol, adjusting medication according to how it needs. He has lowered my prednislone this morning to 2.5mg to see if i can gradually work off it and only use it for flare ups but it is only a months trial so if it goes haywire it can be put back up to 5mg.
I am to stay on nebulisers four times a day permentanly as my asthma is better controlled this way.
Over all i am quite please with how things are going as i am able to walk a little more distance at a very slow pace, i can do most things for myself finally. Providing i can park close to shops i can do my own shopping very slowly. I am looking at getting in to part time work with help from the job centre. This is taking time but it moving in the correct direction.
I know i will have up and down times when my asthma or reflux flares up but these i will cope with as they come i am just thankful for reaching some stablisation.
I am to stay on nebulisers four times a day permentanly as my asthma is better controlled this way.
Over all i am quite please with how things are going as i am able to walk a little more distance at a very slow pace, i can do most things for myself finally. Providing i can park close to shops i can do my own shopping very slowly. I am looking at getting in to part time work with help from the job centre. This is taking time but it moving in the correct direction.
I know i will have up and down times when my asthma or reflux flares up but these i will cope with as they come i am just thankful for reaching some stablisation.
Thursday, 16 April 2009
It all takes time
My mum used to say 'It all takes time.' when I was young and impatient for something. I'd guess getting the meds right and the asthma under control is something the same.
I have this invisible elephant that sometimes comes and sits on me during the night. Well, that's what it feels like when I awaken yet again at 4am.
My DH says he didn't know he'd signed for damaged goods and could he still take me back for a refund. Ha ha.
Reminding self that asthma diagnosed 4th Feb of this year and that it will indeed take time to see if the meds given Clenyl Modulite 200 x one puff, twice a day plus Ventolin if required is the right one for me. I've always kept a journal so checking back over last months, I can see how immediately how far I've come in this short while.
My cough gone completely and a lot less breathless after exertion.
Today I had a lovely walk with my granddaughter and son in law. The weather was chilly with a cold wind but I could hold a conversation without coughing my head off or continually clearing my throat. Bliss. True, we did walk at the wee one's pace rather than her dad's long gait, but still a joy to do it and not be breathless at all.
Tuesday, 14 April 2009
A Mums view, part b
So I have finally allowed Jack to stay at his Grandparents again (he has been too ill to stay anywhere other than hospital and home for months) for a couple of days and even though they are the next best thing to us (his mum and dad) the fear in incredible. Off he went bags packed, one for clothes one for meds and a very excited Jack goes along with an Easter egg to keep him company, oh and younger brother and sister!!! All going well and they are being thoroughly spoilt, ( hmm don't remember my mum allowing me to do what I please or eat whatever I want) and am feeling quite redundant and wondering what on earth I did before the children came along!!
The next morning I trot off to work (yay) and try not to phone at the ungodly hour to check all ok, so when 10am comes around the fingers have dialled the number before I can even think about it. How on earth do I mange to be such an anxious mother, I was never like this before and I am starting to think that maybe my poor 11 year old son, who is trying so desperately to grow up is rolling his eyes at his neurotic mother, is getting a tad fed up at the constant questions fired at him when I'm not in his company. In fact they are listed in the same order each time:
A. whats your peak flow?
B. have you had all your meds?
C. how you feeling?
D. what colour are your lips?
E. count to ten fast? (done to see how many he can count to without getting breathless, some method to my madness)
So I have a little chat to my two other children, and hear all that they are getting up too and then my mum comes on the phone, "erm" the conversation begins, and my heart sinks "Jack is looking a little grey, Kate and he is saying he doesn't feel too well". What have I done, I'm not there to see how bad he is, how bad a mother am I, just a few of the questions I ask myself in the 3 seconds gap before I have to respond to my mum, so I fire some instructions to her and after realising he isn't great I tell them to get him to the local hospital where he can have a neb and an iv to pick him up.
He was kept in over night and sent home the next morning and is a bit brighter now but the poor thing cant get over the exhaustion and we have had to get the home neb back out for him. Will this never end? I seem to be watching my boy slowly become a shadow of his bubbly former self. The guilt of having healthy lungs and a fully functioning body, along with the helplessness of not being able to do anything other than be an outsider looking in through the cloudy window is making me a neurotic and stressed out person. I am beginning to become a split personality, one side the same mum who teases her kids and never gets upset about what goes on, the one who tells Jack that we can handle anything that is thrown at us because we are a team. Then the one who sits on her own when everyone else isn't around who weeps for her baby and is terrified about the future and what it holds for him!
Oh to have a magic wand and be able to wave all this away, even if it is just long enough for him to regain some strength and his positive attitude.
We have another week to enjoy before hopefully back to school, so I'll keep my chin up and my mouth closed and try to have a more cheerful blog next time. Hope you are all not suffering with the pollen count and all had a lovely Easter.
The next morning I trot off to work (yay) and try not to phone at the ungodly hour to check all ok, so when 10am comes around the fingers have dialled the number before I can even think about it. How on earth do I mange to be such an anxious mother, I was never like this before and I am starting to think that maybe my poor 11 year old son, who is trying so desperately to grow up is rolling his eyes at his neurotic mother, is getting a tad fed up at the constant questions fired at him when I'm not in his company. In fact they are listed in the same order each time:
A. whats your peak flow?
B. have you had all your meds?
C. how you feeling?
D. what colour are your lips?
E. count to ten fast? (done to see how many he can count to without getting breathless, some method to my madness)
So I have a little chat to my two other children, and hear all that they are getting up too and then my mum comes on the phone, "erm" the conversation begins, and my heart sinks "Jack is looking a little grey, Kate and he is saying he doesn't feel too well". What have I done, I'm not there to see how bad he is, how bad a mother am I, just a few of the questions I ask myself in the 3 seconds gap before I have to respond to my mum, so I fire some instructions to her and after realising he isn't great I tell them to get him to the local hospital where he can have a neb and an iv to pick him up.
He was kept in over night and sent home the next morning and is a bit brighter now but the poor thing cant get over the exhaustion and we have had to get the home neb back out for him. Will this never end? I seem to be watching my boy slowly become a shadow of his bubbly former self. The guilt of having healthy lungs and a fully functioning body, along with the helplessness of not being able to do anything other than be an outsider looking in through the cloudy window is making me a neurotic and stressed out person. I am beginning to become a split personality, one side the same mum who teases her kids and never gets upset about what goes on, the one who tells Jack that we can handle anything that is thrown at us because we are a team. Then the one who sits on her own when everyone else isn't around who weeps for her baby and is terrified about the future and what it holds for him!
Oh to have a magic wand and be able to wave all this away, even if it is just long enough for him to regain some strength and his positive attitude.
We have another week to enjoy before hopefully back to school, so I'll keep my chin up and my mouth closed and try to have a more cheerful blog next time. Hope you are all not suffering with the pollen count and all had a lovely Easter.
Monday, 13 April 2009
upsy daisy
My peak flow appears to be dropping it has been going down over the last couple of days. I feel well though which is quite odd. I think it could be because i have done a little too much and need to rest.......... This i do not want to do at the moment i want to keep going but i must not push myself too hard, i know what the consequences are if i do. It would mean a stint in hospital. Not a place i want to go. My reflux is also playing up, i am back to see my consultant on friday and he shall be told that reflux is not getting better, it is up and down like a yo yo and it needs sorting once and for all as i am fed up of it! I would just like to not have a burning sensation my chest area and not be burping continuously. It is very disgusting. I am very tired and thinking of getting an early night. Hopefully i might sleep better than last night. I woke up with reflux once and asthma once.
Saturday, 11 April 2009
Sniff, Sniff, Sneeze.
I'm a very bad blogger. Oh well. Not much has been happening! My asthma's started to get a lot better under control, I even managed to hit 580 on my peak flow in the doctors the other day. I was well happy! I'm saying it's atrovent. It's really managed to get my symptoms under control. I'm not coughing as much, and my ventolin usage has gone way down. I still don't understand why they stopped it in the first place. My old GP's excuse was something a long the lines of "We need to keep atrovent for the COPD patients." Now I was under the impression that if something works, then don't fix it? Oh well, that was that GP's idea. In other news, I had a wonderful trip to out of hours yesterday. It wasn't for asthma thank goodness, I've quite badly pulled a muscle in my leg, and it's bloomin' painful. I was waiting for about two hours. I was quite annoyed that the wee boy beside us was in the middle of going splatt, and they made him wait. He wasn't wheezing too bad, but he did seem quite short of breath. I was quite suprised they didn't send him to A&E, because they did before when he was like that.
I'm off to Manchester on Monday for a certain AUK'ers birthday! I'm going to be up for 2 nights, and I can't wait. We've been planning it for weeks. We've got the present, venue, edibles and people all lined up and sorted! I'm so excited! And then on Wednesday my dad's coming to see me. It's going to be a great week, I haven't seen my dad in 3 months. I really can't wait to give him a huge hug lol.
Anyway, I saw a 7 random facts thing on facebook, and I thought I could do it on here!
1) I've got a very confused patriotism. I've got a british birth cert, but have lived in Ireland for 8 years and have an irish passport. Although I'll always support the irish rugby team!
2) I've been in every continent except S.America and the 2 Artics, something I will change lol.
3) I have 3 wristbands on my wrist, none of which have come off since the day I got them. The oldest one is nearly 2 years old and it's from a charity in Cambodia.
4) I'm a qualified Open Water SCUBA diver. Despite asthma I managed to pass the exam and everything in Thailand in 2007. It was amazing.
5) My bedroom wall is covered in stuff. I've got pictures, boarding cards, rail tickets, school certificates and lanyards all over it.
6) I've met 6 members of AUK, and hopefully will be meeting more at the Asthma UK Youth conference!
7) I love my iPod. I NEVER leave the house without it. It's practically got my life on it. I've got something like 2500 songs on it, half of which I've probably never even listened to. But I still love it to bits!
Laters!
I'm off to Manchester on Monday for a certain AUK'ers birthday! I'm going to be up for 2 nights, and I can't wait. We've been planning it for weeks. We've got the present, venue, edibles and people all lined up and sorted! I'm so excited! And then on Wednesday my dad's coming to see me. It's going to be a great week, I haven't seen my dad in 3 months. I really can't wait to give him a huge hug lol.
Anyway, I saw a 7 random facts thing on facebook, and I thought I could do it on here!
1) I've got a very confused patriotism. I've got a british birth cert, but have lived in Ireland for 8 years and have an irish passport. Although I'll always support the irish rugby team!
2) I've been in every continent except S.America and the 2 Artics, something I will change lol.
3) I have 3 wristbands on my wrist, none of which have come off since the day I got them. The oldest one is nearly 2 years old and it's from a charity in Cambodia.
4) I'm a qualified Open Water SCUBA diver. Despite asthma I managed to pass the exam and everything in Thailand in 2007. It was amazing.
5) My bedroom wall is covered in stuff. I've got pictures, boarding cards, rail tickets, school certificates and lanyards all over it.
6) I've met 6 members of AUK, and hopefully will be meeting more at the Asthma UK Youth conference!
7) I love my iPod. I NEVER leave the house without it. It's practically got my life on it. I've got something like 2500 songs on it, half of which I've probably never even listened to. But I still love it to bits!
Laters!
Friday, 10 April 2009
mums view
Hi, I'm a mum of two brittle asthmatics, both boys, both the most cheerful little souls you could ever wish to meet ( maybe biased but they are a delight) and wanted to let other mums know that someone else does know how tough it is to have asthmatic children.
My eldest son was diagnosed at 6 months and has been in and out of hospital most of his life. His asthma is very badly managed and is on an awful lot of medication all of the time, including daily steroids which has been ongoing for 6 months now. Unfortunately we have found out in the last month that he has gone into endocrine failure due to all the steroids he has taken over the last 11 years. Tough for an adult to take in even harder for a young man to get to grips with, especially when he likes to ask questions about how this will effect him. My younger son of 7 is not as severe as his brother but does also take a lot of medication, and enjoys a number of hospital visits!!!
For my sons, this disease is part of their lives and they are used to not being able to walk up the stairs because they can't breath, or having to rest for 3 days after an exciting day out to cadbury's world, (WHICH WAS FAB) but as a mum to watch your baby gasping for breath and slipping into unconsciousness in front of your eyes is the most terrifying and heartbreaking scene you could ever imagine. The fear that every breath may be their last and the fact that you can't control that part of their life that you so desperately want to control is your worst nightmare come true. The thing I want to do the most is take the asthma away and give them my healthy lungs, and maybe allow them to enjoy a normal day, just one of childhood.
The blessing is my beautiful sons never ask why me, or complain when stuck in hospital for two weeks at a time, hooked up to all sorts of machines. I am a very, very lucky mum to have such kind and generous children whose illness gives them more empathy for other people who are a little different and maybe aren't the slotted into the normal box.
So anyway I'm going to be blogging about how everyday life is as a mum and the highs and lows of living with asthmatics. The next few months will be interesting as we will discover what they can do for Jack (11 year old) and how his life will change once the endocrinologist become totally involved.
Will bore you again soon
Kate
My eldest son was diagnosed at 6 months and has been in and out of hospital most of his life. His asthma is very badly managed and is on an awful lot of medication all of the time, including daily steroids which has been ongoing for 6 months now. Unfortunately we have found out in the last month that he has gone into endocrine failure due to all the steroids he has taken over the last 11 years. Tough for an adult to take in even harder for a young man to get to grips with, especially when he likes to ask questions about how this will effect him. My younger son of 7 is not as severe as his brother but does also take a lot of medication, and enjoys a number of hospital visits!!!
For my sons, this disease is part of their lives and they are used to not being able to walk up the stairs because they can't breath, or having to rest for 3 days after an exciting day out to cadbury's world, (WHICH WAS FAB) but as a mum to watch your baby gasping for breath and slipping into unconsciousness in front of your eyes is the most terrifying and heartbreaking scene you could ever imagine. The fear that every breath may be their last and the fact that you can't control that part of their life that you so desperately want to control is your worst nightmare come true. The thing I want to do the most is take the asthma away and give them my healthy lungs, and maybe allow them to enjoy a normal day, just one of childhood.
The blessing is my beautiful sons never ask why me, or complain when stuck in hospital for two weeks at a time, hooked up to all sorts of machines. I am a very, very lucky mum to have such kind and generous children whose illness gives them more empathy for other people who are a little different and maybe aren't the slotted into the normal box.
So anyway I'm going to be blogging about how everyday life is as a mum and the highs and lows of living with asthmatics. The next few months will be interesting as we will discover what they can do for Jack (11 year old) and how his life will change once the endocrinologist become totally involved.
Will bore you again soon
Kate
Just saying Hi
My asthma is quite light and doesn't on the whole get in the way of my day to day life. I will be posting in what way it does occasionally get in the way. But mostly I will be a wee cheery soul.
GrannyMo 8 )
Friday, 3 April 2009
Quicky!
Today has been a tired day but i have had a hectic week. I go to scotland on monday for five days hopefully will be a rest, but will all depend on the size of the hotel and things like that i guess. I am now using my wheelchair less and really noticing an impact on my breathing, i am more breathless and more wheezy but still battling on. Things are going well over all.
Wednesday, 1 April 2009
A family perspective
I sat down to right a blog as figured I haven't done one in ages on either my blog or this one. It is time to update. Well not really update. I decided to speak to my mum briefly about her perspective of living with me as a brittle asthmatic. She decided to write a small piece. I have decided to use parts of it as I never realised quite the impact it has on her as a parent.
Asthma is something that has always been in the family so it is nothing new me being diagnosed. There is a strong family history of asthma and eczema. It is something that you either have on or the other or both. There is no one without one or the other.
As a young child the asthma was well controlled and it tended to be my brothers who ended up in hospital with broken bones or concussion etc. As i got older the roles changed it ended up me being in and out of hospital more and them less as my asthma attacks got worse.
Mum wrote "as a parent watching your child struggle to breathe is the most terrifying experience. You cannot compare it to anything else as you are helpless. There is no way you can help them breathe. The most distressing part is that as a parent the natural instinct is to cuddle and hold your child but often this makes their experience worse"
I never realised or really considered what an asthma attack must be like from my parents perspective. Mum explained how frightening it was and how she wishes it was her when I struggle. It is something I would never wish on anyone. I have always wanted to live my life how I wanted to and never took into consideration the fear that they suffer.
the last 7 years have been very difficult but last year i temporarily left university to try and get better. My mum wanted me to stay back at home and transfer university but me being stubborn I was having none of it. i went back down south as soon as my consultant said it was ok. I never thought about how my mum must have felt. I got irritated by the daily phone calls from her. She explained to me that she "called everyday as she was worried if she did not hear that i was ok she would not be able to settle. You can text when your in hospital so how do I know your ok?". previously i had been in hospital and not told my mum but had text her and said i was ok. However it came out in the end that I was in hospital.
it was a hard conversation speaking to mum about it all. I guess I was quite selfish as I was wrapped up in how I felt about my asthma and did not consider that others had to deal with it. the were having to live through it as I did too.
Mum explained that life would be adapted when i got home to make sure the environment would not trigger any attacks and so that we did activities that I could manage. i had never considered this and feel quite upset at the lengths they go to to help me and protect me. i had no knowledge of this.
I always tried to live a normal life and thought I was however I have now seen that life is not quite so normal. People adapt around me despite me doing what i what.
During the conversation with Mum she asked me if I ever wished i didn't have asthma. Of course I do wish I didn't have it but at the same time I don't. Mum couldn't understand why i would wish to sometimes still have asthma. I tried to explain that I have done things that i would never have done and met some great people. She couldn't quite understand.
Does anyone else wish they did and didn't have asthma??
Saturday, 28 March 2009
~Post by Numbers~
*is a bad blogger and hasn't blogged for far too long!*
Sooooooo... Nothing much has happened in Cookieland so I thought I'd post this instead.
1. The number of nebs I've had in the last week
2. The number of kids i'm babysitting this weekend...
3. The number of weeks til I can legally get drunk!
4. The number of days til I meet a certain AUKer for the 3rd time!
5. The number of hours til Casualty's on...
6.The age I was when I was diagnosed with asthma
7. The number of times my family have come into my room and given me wierd looks for listening to classic CBBC show theme tunes on youtube!!
8. The number of A level modules I sat in January!
9. When added to the next number, the date in April when I will be abseiling off the Forth Rail Bridge for AUK!
10. The number of empty Lucozade bottles I can see from my bed...
Sooooooo... Nothing much has happened in Cookieland so I thought I'd post this instead.
1. The number of nebs I've had in the last week
2. The number of kids i'm babysitting this weekend...
3. The number of weeks til I can legally get drunk!
4. The number of days til I meet a certain AUKer for the 3rd time!
5. The number of hours til Casualty's on...
6.The age I was when I was diagnosed with asthma
7. The number of times my family have come into my room and given me wierd looks for listening to classic CBBC show theme tunes on youtube!!
8. The number of A level modules I sat in January!
9. When added to the next number, the date in April when I will be abseiling off the Forth Rail Bridge for AUK!
10. The number of empty Lucozade bottles I can see from my bed...
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