OK, so today was my new patient medical at my new doctors.
Went in, did weight, height, BP, PF and all that rubbish. Somehow she already has my notes from old GP, so she knows my history. Apparently a PF of 300 wasn't acceptable. Now, see this is where I disagree. This is normal for me now. As much as my room-mate will disagree with this statement, I'm fine. We talked about different approaches to take, and it has been decided I'm going to see the GP tomorrow. This should be interesting. It takes me a long time to trust a GP, after I got a rather rubbish one a few years back, and then another one who can't tell her arse from her elbow. Hmm.... How long will it take this time?
So watch this space, I could be trialling some new wonder drug that cures everything. I'm thinking of asking for Paracetamoxyfrusebendroneomycin...
http://www.youtube.com/watch?v=jcrijUrDDiI
Showing posts with label Journal. Show all posts
Showing posts with label Journal. Show all posts
Thursday, 12 February 2009
Monday, 9 February 2009
About Elephant2001/Vicky
OK, Well I suppose the right way to start this thing would be to say Hi! I'm Vicky, although I answer to Ickybob, Vicky, Icky Irish and Nutter. I'm 17, and have just moved from Ireland to Leicester. I live with my best mate and her family. 2 Asthmatics in one room. It makes for fun times.
I've got moderate asthma, and am quite lucky that it doesn't affect me that much. I'm having a bit of a rough patch at the minute, but I'm blaming it on the weather and stress. I've had asthma for about 3 years. I'm a bit of a nightmare when it comes to being co-operative, and tell my room-mate to bog off when she tells me to take my inhaler. Generally out of sheer stubborness. But other times I'm just being stupid.
When I lived in Ireland I lived with my mum, stepdad, little brother and our dog, that 2 weeks before I left had 4 puppies. I've met some awesome people through Asthma UK, without asthma, I wouldn't have met them.
I'm very lucky to have the mates I do!
I've got moderate asthma, and am quite lucky that it doesn't affect me that much. I'm having a bit of a rough patch at the minute, but I'm blaming it on the weather and stress. I've had asthma for about 3 years. I'm a bit of a nightmare when it comes to being co-operative, and tell my room-mate to bog off when she tells me to take my inhaler. Generally out of sheer stubborness. But other times I'm just being stupid.
When I lived in Ireland I lived with my mum, stepdad, little brother and our dog, that 2 weeks before I left had 4 puppies. I've met some awesome people through Asthma UK, without asthma, I wouldn't have met them.
I'm very lucky to have the mates I do!
Friday, 6 February 2009
kitkat update...
I spent a good 12.5 hours travelling what normally is little over a 2 hour journey today. The snow really did cause total chaos. My chest was quite grumpy because of the chopping and changing into and out of warm/cold environments.
Nebs are a life-saver though and I did fine after a few throughout the course of the day. The staff at national express were great too-really helpful considering what awful weather they faced....
Ive arrived up north had cuddles with my newborn nephew watched bath and bedtime and I am feeling very content.. I am now off to bed myself as I am totally wiped out but have a busy day of baby cuddling ahead of me tomorrow!!
Nebs are a life-saver though and I did fine after a few throughout the course of the day. The staff at national express were great too-really helpful considering what awful weather they faced....
Ive arrived up north had cuddles with my newborn nephew watched bath and bedtime and I am feeling very content.. I am now off to bed myself as I am totally wiped out but have a busy day of baby cuddling ahead of me tomorrow!!
Thursday, 5 February 2009
About Emzieness // Snow Fun
Hi,
I'm Emma, i'm 17 and i'm an alcoh...I mean asthmatic :).
I've had asthma for 3 years (On February 20th/21st) and although it is a pain, I suppose it's become a part of me. I have asthma- It certainly doesn't have me.
I'd like to share a few pictures of today. I spent today having fun with a fellow AUK'er and here are the results....
Without having asthma I probably wouldn't have met some of the great people I have and if I was given the option of those friends or asthma...Friends would win- everytime.
Emma x
I'm Emma, i'm 17 and i'm an alcoh...I mean asthmatic :).
I've had asthma for 3 years (On February 20th/21st) and although it is a pain, I suppose it's become a part of me. I have asthma- It certainly doesn't have me.
I'd like to share a few pictures of today. I spent today having fun with a fellow AUK'er and here are the results....
Without having asthma I probably wouldn't have met some of the great people I have and if I was given the option of those friends or asthma...Friends would win- everytime.
Emma x
Tuesday, 3 February 2009
Snow Day!!!
Its snowed an awful lot here lol!! Lots of the stuff piled everywhere near me - transport ground to a halt and no buses to my area!! mmmmm! Did sort of snow me into my house but I have managed to push my way through it now lol!
Bonus to all this is that my god daughter wanted me to make a snowman - I have started on this mammoth project - he is a slight snow mound at the moment though lol!!! about 3 feet tall though!
I have to go out in short bursts coming in for regular nebs and cups of coffee - and warming/drying out the gloves :-)
I still have a rather hideous chest infection but it tends to affect me worst during the night and early in the morning!! The rest of the day I have the odd rumblings of something but on the whole its all going OK!!
I today sent a very over due card of thanks to my old GP - this may seem strange but the woman deserves a medal for putting up with me for 8 years lol!!! She was one in a million and I felt she needed to be thanked for all her hard work, time and effort. Its strange how you get used to a certain GP when you have a chronic illness they sometimes do become very easy to talk to and my GP was no different to that - I didn't really find it too difficult talking to her about a variety of issues... My new GP is also great but having only seen her 3 times its still all very very new to me and needless to say its not as easy talking to her yet!!
Anyways Ive had my neb and my coffee and I am stalling as i am not really sure how to make and stick the head on my snowman lol!!! mmmmm!!
I'm off out again - bye guys!!
Xxx
Bonus to all this is that my god daughter wanted me to make a snowman - I have started on this mammoth project - he is a slight snow mound at the moment though lol!!! about 3 feet tall though!
I have to go out in short bursts coming in for regular nebs and cups of coffee - and warming/drying out the gloves :-)
I still have a rather hideous chest infection but it tends to affect me worst during the night and early in the morning!! The rest of the day I have the odd rumblings of something but on the whole its all going OK!!
I today sent a very over due card of thanks to my old GP - this may seem strange but the woman deserves a medal for putting up with me for 8 years lol!!! She was one in a million and I felt she needed to be thanked for all her hard work, time and effort. Its strange how you get used to a certain GP when you have a chronic illness they sometimes do become very easy to talk to and my GP was no different to that - I didn't really find it too difficult talking to her about a variety of issues... My new GP is also great but having only seen her 3 times its still all very very new to me and needless to say its not as easy talking to her yet!!
Anyways Ive had my neb and my coffee and I am stalling as i am not really sure how to make and stick the head on my snowman lol!!! mmmmm!!
I'm off out again - bye guys!!
Xxx
Sunday, 1 February 2009
Plumie - 01/02/2009
Did way too much yesterday and paid for it in the night, by having a lovely attack, if it can be called lovely?! Sat in bed struggling to breathe taking my reliever every minute until my symptoms decreased and finally disappeared just leaving me tired. Not something you want to be doing really at 2am. Would much rather sleep through this time!
Yesterday i went looking a new cars and testing driving some. I have chosen the car i would like and it is on order as it needs adaptations fitting to make it suitable to me. Hopefully it will mean i have a more reliable car and that it will be more user friendly too me. Like i wont get stuck trying to get out of it, i wont have to twist as much to see and i wont have to lift my own wheelchair out a special host will do it for me. (lifting a wheelchair is not good for lungs).
Yesterday, i was asked why i could walk around the house but could not walk around shopping centres or my church building. It has something to do with the size i believe and also how my chest is feeling on that particular day. It is very frustrating that people actually ask you why you use a wheelchair? When they think that as an asthmatic you should still be able to run around and do sports. My asthma really limits me and I find that I still cannot walk to the end of the street and back without having an asthma attack and feeling ill for the next few days following my little walk. Also my sats drop incredibly. I personally do not like having to use a wheelchair as i used to be so physically active playing sports and doing lots of walking but if i want to prevent asthma attacks and spend some time out of the house i have very little choice.
It is quite hurtful when people look at you and ask are you a fake? Deep down i really wish i did not need a wheelchair and that i could walk long distances and play sports but due to the many attacks and infections i have had in the last 2 years i need to take it really slowly and follow my medical professionals advice. I guess it is the things you need to do to avoid lots of hospital admissions.
I am finally back on my maintance dose of prednisolone hoping that I will be able to stay at this for a while and maybe even come off it without a big flare up. When you have severe asthma it is the little achievements that are so big to that individual. Please do not judge people by what they cannot do, but by what they can do. People pointing out what someone cannot do due to the asthma is really not helpful and actually quite hurtful.
Yesterday i went looking a new cars and testing driving some. I have chosen the car i would like and it is on order as it needs adaptations fitting to make it suitable to me. Hopefully it will mean i have a more reliable car and that it will be more user friendly too me. Like i wont get stuck trying to get out of it, i wont have to twist as much to see and i wont have to lift my own wheelchair out a special host will do it for me. (lifting a wheelchair is not good for lungs).
Yesterday, i was asked why i could walk around the house but could not walk around shopping centres or my church building. It has something to do with the size i believe and also how my chest is feeling on that particular day. It is very frustrating that people actually ask you why you use a wheelchair? When they think that as an asthmatic you should still be able to run around and do sports. My asthma really limits me and I find that I still cannot walk to the end of the street and back without having an asthma attack and feeling ill for the next few days following my little walk. Also my sats drop incredibly. I personally do not like having to use a wheelchair as i used to be so physically active playing sports and doing lots of walking but if i want to prevent asthma attacks and spend some time out of the house i have very little choice.
It is quite hurtful when people look at you and ask are you a fake? Deep down i really wish i did not need a wheelchair and that i could walk long distances and play sports but due to the many attacks and infections i have had in the last 2 years i need to take it really slowly and follow my medical professionals advice. I guess it is the things you need to do to avoid lots of hospital admissions.
I am finally back on my maintance dose of prednisolone hoping that I will be able to stay at this for a while and maybe even come off it without a big flare up. When you have severe asthma it is the little achievements that are so big to that individual. Please do not judge people by what they cannot do, but by what they can do. People pointing out what someone cannot do due to the asthma is really not helpful and actually quite hurtful.
Thursday, 29 January 2009
KitKat - update...
I have managed over a month out of hospital!! I came out on 21st December and more importantly I am still out! This is the longest that I have managed since this time last year as I spent all but 5 weeks of last year in the hotel NHS!! I can say on reflection its been a very hard 12 months constant chest infections and wheezing, then the fact that it is so disabling that I haven't yet been able to return to work. This then adds stress to the situation which then makes things worse... thus the cycle continues...
I am again fighting off another infection and judging by some others who also contribute to this blog, its a common but hard to get rid of bug that is currently living and partying in my lungs!!! I hope it does go soon... I am trying to get up early at the moment after realising I was getting myself into a destructive cycle of not doing very much! I have also been trying to walk around more - this has been difficult and I am wheezing and out of breath more as a result of it but it needs to be done in order for me to get back to work, I really hope also that remploy help with the work situation!!
As for me I'm slowly getting used to the disabling nature of brittle asthma though I am determined not to let it stop me doing things!!
Bye for now
I am again fighting off another infection and judging by some others who also contribute to this blog, its a common but hard to get rid of bug that is currently living and partying in my lungs!!! I hope it does go soon... I am trying to get up early at the moment after realising I was getting myself into a destructive cycle of not doing very much! I have also been trying to walk around more - this has been difficult and I am wheezing and out of breath more as a result of it but it needs to be done in order for me to get back to work, I really hope also that remploy help with the work situation!!
As for me I'm slowly getting used to the disabling nature of brittle asthma though I am determined not to let it stop me doing things!!
Bye for now
Plumie - 29/01/2009
I just realised it was pretty much the end of january 2009 where has the time gone? I have done pretty well no admissions so far this month, been out of hospital a month now, a month today in fact! Although i think there has probabley been a few times when i was really close. Asthma is really frightening especially when you are sat waiting for your reliever to kick in and you are wondering if it will this time or if you are going to have to parcel yourself off to the local a and e department.
Today i have been to my expert patients programme course, i am really enjoying it even though i do find it very tiring all the talking and the walking up and down a very long corridor. We were learning about distraction and how to monitor your exercise and how exercise can be just getting up and dressed in a morning. I have also managed to play my flute for 30 seconds today :D
I think i have started with a cold and certainly have a barking productive cough. How are other people doing with there asthma and the many bugs that are around? Are you ready for the big freeze that is apparently on its way? Are your lungs ready? How do other people find monitoring there condition there self? What ways have people found at doing this? I know that when ever you are in doubt about something off to the GP's or a phone call to the respiratory nurse is called for but the day to day management how do people do it?
Today i have been to my expert patients programme course, i am really enjoying it even though i do find it very tiring all the talking and the walking up and down a very long corridor. We were learning about distraction and how to monitor your exercise and how exercise can be just getting up and dressed in a morning. I have also managed to play my flute for 30 seconds today :D
I think i have started with a cold and certainly have a barking productive cough. How are other people doing with there asthma and the many bugs that are around? Are you ready for the big freeze that is apparently on its way? Are your lungs ready? How do other people find monitoring there condition there self? What ways have people found at doing this? I know that when ever you are in doubt about something off to the GP's or a phone call to the respiratory nurse is called for but the day to day management how do people do it?
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